Heart henna box.

Heart henna box.

Wednesday, February 8, 2017

Congenital Heart Defect Awareness.

It's CHD Awareness Week and I would like to share a video made by one of my Zipper Sisters. I am in this video, along with many brave and amazing women who were also born with Congenital Heart Defects. If there is one thing I would like to teach people about CHD it is that it's a lifelong battle. We are never "all fixed". Many of us have to endure repeated open heart surgeries and other invasive procedures over and over, all our lives, and the damage to our hearts from scar tissue and other complications is irreversible. There is no cure, no magic pill, and no end to the struggle, even for those of us who go through heart transplants. All we can do is attempt to make the best of the lives we have been given, with as much love and courage as we can muster, everyday.

https://youtu.be/5veYTUYiTr8